UDSv4 Downloads
Latest Release: 2.1.0 (04/14/2026)
General download links
This section contains module-level file downloads for the UDSv4 as a whole, including: Project XML, Data Dictionary, Coding Guidebooks.
- REDCap XML [Last Updated 04/14/2026]
- REDCap Data Dictionary [Last Updated 04/14/2026]
- Data Element Dictionary (DED)
- Coding Guidebook
- Instructions for the Neuropsychological Battery (C2)
-
Instructions for the T-cog Neuropsychological Battery (C2T)
- C2T Worksheets
-
The Validation of Video Administration of a Modified UDSv3 Cognitive Battery (VCog) Study (PI: Dr. Bonnie Sachs) has graciously shared some resources to assist with the remote administration of the UDS cognitive battery. Below are their hearing and environmental screening that they complete in advance of video testing, as well as some additional modified instructions that they use on the Benson, Craft Story, Number Span and RAVLT to reduce the likelihood of use of unauthorized aids. For the MoCA, the VCog study uses the published MoCA instructions for the A/V MoCA, and for Trail Making they administer the Oral Trail Making Test (OTMT) in place of written trails as written trails does not easily translate to video.
To see the REDCap project changes made to accommodate FVP details, please reference this spreadsheet.
udsv4 will no longer include the z1x form as a data collection instrument. variables to collect language, submission status for optional forms, and reason for not submitting have been moved to the header for each individual form. please refer to the udsv4 data element dictionary for details on these variables. nacc developed a guidance for udsv4 submission document to indicate which forms are absolutely required for submission
the redcap forms were carefully developed by members of the edcs workgroup in collaboration with nacc and the clinical task force, with substantial attention to detail and alignment with program-wide standards.
if your center elects to make custom modifications to these forms, please be aware that such changes may introduce unexpected issues or inconsistencies. the center is responsible for validating, maintaining, and troubleshooting the functionality and integrity of any customized forms.
Form-level files
| Name | REDCap Instrument ZIP Files | Requires Form Header? | Crosswalk | JSON Files for Crosswalk | |
|---|---|---|---|---|---|
| Form Header | Form Header | ||||
| A1 Participant Demographics | A1 IVP A1 FVP | ZIP File | Yes | A1 Crosswalk | A1 Crosswalk Mapping |
| A1a SDOH Optional Form | A1a IVP A1a FVP | ZIP File | Yes | N/A | N/A |
| A2 Coparticipant Demographics | A2 IVP A2 FVP | ZIP File | Yes | A2 Crosswalk | A2 Crosswalk Mapping |
| A3 Participant Family History | A3 IVP A3 FVP | ZIP File | Yes | A3 Crosswalk | A3 Crosswalk Mapping |
| A4 Participant Medications | A4 IVP A4 FVP | ZIP File | Yes | A4 Crosswalk | A4 Crosswalk Mapping |
| A4a ADRD Specific Treatments | A4a IVP A4a FVP | ZIP File | Yes | N/A | N/A |
| A5D2 Participant Health History Clinician-Assessed Medical Conditions | A5D2 IVP A5D2 FVP | ZIP File | Yes | A5D2 Crosswalk | A5D2 Crosswalk Mappings |
| B1 Vital Signs and Anthropometrics | B1 IVP B1 FVP | ZIP File | Yes | B1 Crosswalk | B1 Crosswalk Mapping |
| B3 Unified Parkinson's Disease Rating Scale (UPDRS) Motor Exam | B3 IVP B3 FVP | ZIP File | Yes | N/A | N/A |
| B4 CDR Dementia Staging Instrument | B4 IVP B4 FVP | ZIP File | Yes | B4 Crosswalk | B4 Crosswalk Mapping |
| B5 Neuropsychiatric Inventory Questionnaire NPIQ | B5 IVP B5 FVP | ZIP File | Yes | B5 Crosswalk | B5 Crosswalk Mapping |
| B6 Geriatric Depression Scale | B6 IVP B6 FVP | ZIP File | Yes | B6 Crosswalk | B6 Crosswalk Mapping |
| B7 Functional Assessment Scale FAS | B7 IVP B7 FVP | ZIP File | Yes | B7 Crosswalk | B7 Crosswalk Mapping |
| B8 Neurological Examination Findings | B8 IVP B8 FVP | ZIP File | Yes | B8 Crosswalk | B8 Crosswalk Mapping |
| B9 Clinician Judgment of Symptoms | B9 IVP B9 FVP | ZIP File | Yes | B9 Crosswalk | B9 Crosswalk Mapping |
| C2 Neuropsychological Battery Scores | C2 IVP C2 FVP | ZIP File | Yes | C2 Crosswalk | C2 Crosswalk Mapping |
| C2T T-cog Neuropsychological Battery Scores | C2T IVP C2T FVP | - | - | - | |
| D1a Clinical Syndrome | D1a IVP D1a FVP | ZIP File | Yes | D1a Crosswalk | D1a Crosswalk Mapping |
| D1b Biomarker-Based Diagnostics | D1b IVP D1b FVP | ZIP File | Yes | D1b Crosswalk | D1b Crosswalk Mapping |
| D1c Biological and Clinical Staging | D1c IVP D1c FVP | – | Yes | N/A | N/A |
Form Translations
| Name | Spanish |
|---|---|
| IVP Packet | IVP Packet (es) |
| FVP Packet | FVP Packet (es) |
| A1 Participant Demographics | A1 IVP (es) A1 FVP (es) |
| A1a SDOH Optional Form | A1a IVP (es) A1a FVP (es) |
| A2 Coparticipant Demographics | A2 IVP (es) A2 FVP (es) |
| A3 Participant Family History | A3 IVP (es) A3 FVP (es) |
| A4 Participant Medications | A4 IVP (es) A4 FVP (es) |
| A4a ADRD Specific Treatments | A4a IVP (es) A4a FVP (es) |
| A5D2 Participant Health History Clinician-Assessed Medical Conditions | A5D2 IVP (es) A5D2 FVP (es) |
| B1 Vital Signs and Anthropometrics | B1 IVP (es) B1 FVP (es) |
| B3 Unified Parkinson's Disease Rating Scale (UPDRS) Motor Exam | B3 IVP (es) B3 FVP (es) |
| B4 CDR Dementia Staging Instrument | B4 IVP (es) B4 FVP (es) |
| B5 Neuropsychiatric Inventory Questionnaire NPIQ | B5 IVP (es) B5 FVP (es) |
| B6 Geriatric Depression Scale | B6 IVP (es) B6 FVP (es) |
| B7 Functional Assessment Scale FAS | B7 IVP (es) B7 FVP (es) |
| B8 Neurological Examination Findings | B8 IVP (es) B8 FVP (es) |
| B9 Clinician Judgment of Symptoms | B9 IVP (es) B9 FVP (es) |
| C2 Neuropsychological Battery Scores | C2 IVP (es) C2 Worksheets (es) C2 CERAD Flip Book (es) C2 MINT Stimuli (es) C2 FVP (es) |
| C2T T-cog Neuropsychological Battery Scores | C2T IVP (es) C2T FVP (es) C2T Worksheets (es) |
| D1a Clinical Syndrome | D1a IVP (es) D1a FVP (es) |
| D1b Biomarker-Based Diagnostics | D1b IVP (es) D1b FVP (es) |