LBD Downloads
info
Since UDSv4 will no longer include the Z1X form as a data collection instrument, there have been some minor changes the data collected on the Z1X for the FTLD/LBD modules. See the table below for details. The content in the FTLD/LBD modules is not changing otherwise.
Please reference the previous documentation for available resources.
LBD Changes Related to Z1X
The following table lists LBD changes related to Z1X.
| Change Summary | UDSv3 Form | UDSv3 Question | UDSv3 Variable Name | UDSv3 Response Labels | UDSv4 Form | UDSv4 Question | UDSv4 Var Name | UDSv4 Response Labels |
|---|---|---|---|---|---|---|---|---|
| No change | header | PTID | PTID | Any text | header | PTID | PTID | Any text |
| No change | header | ADRC name | ADCID | List of current ADCIDs | header | ADRC name | ADCID | List of current ADCIDs |
| No change | header | ADRC Visit Number | VISITNUM | Any text | header | ADRC Visit Number | VISITNUM | Any text |
| No change | header | Packet Code | PACKET | IL, FL | header | Packet Code | PACKET | IL, FL |
| No change | header | Form version number | FORMVER | 3, 3.1 | header | Form version number | FORMVER | 3, 3.1 |
| UDSv3 variables consolidated into one date variable | header | Visit Month | VISITMO | 1 - 12 | header | Form Date | VISITDATE | mm/dd/yyyy or yyyy/mm/dd |
| UDSv3 variables consolidated into one date variable | header | Visit Day | VISITDAY | 1 - 31 | -- | |||
| UDSv3 variables consolidated into one date variable | header | Visit Year | VISITYR | 2005 to the present year | -- | |||
| Changed to form-specific in UDSv4 | header | Examiner's initials | INITIALS | Any text | -- | -- | -- | -- |
| No longer in UDSv4 | header | Form ID | FORMID | B1L|B2L|B3L|B4L|B5L|B6L|B7L|B8L|B9L|C1L|D1L|E1L|E2L|E3L | -- | -- | -- | -- |
| New variable | -- | -- | -- | -- | b1l | B1L Clinical Symptoms and Exam - Form date | FRMDATEB1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b1l | B1L Clinical Symptoms and Exam - Examiner's initials | INITIALSB1L | Any text |
| New variable | -- | -- | -- | -- | b2l | B2L UPDRS II| Activities of Daily Living - Form date | FRMDATEB2L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b2l | B2L UPDRS II| Activities of Daily Living - Examiner's initials | INITIALSB2L | text |
| Change in variable name and response labels | z1x | B2L UPDRS II| Activities of Daily Living - Submitted? | B2LSUB | 0, No | 1, Yes | b2l | B2L UPDRS II| Activities of Daily Living - Submitted? | MODEB2L | 0, Not completed | 1, In-person |
| Change in variable name | z1x | If B2L not submitted, specify reason | B2LNOT | 95, Physical problem|96, Cognitive/behavioral problem|97, Other|98, Verbal refusal|99, Unknown or inadequate information | b2l | If 'B2L UPDRS II | Activities of Daily Living' not submitted, specify reason | B2LNOT |
| New variable | -- | -- | -- | -- | b3l | B3L UPDRS III| Motor Examination - Form date | FRMDATEB3L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b3l | B3L UPDRS III| Motor Examination - Examiner's initials | INITIALSB3L | text |
| New variable | -- | -- | -- | -- | b4l | B4L Neuropsychiatric Inventory (NPI) - Form date | FRMDATEB4L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b4l | B4L Neuropsychiatric Inventory (NPI) - Examiner's initials | INITIALSB4L | text |
| New variable | -- | -- | -- | -- | b5l | B5L Mayo Fluctuations Scale - Form date | FRMDATEB5L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b5l | B5L Mayo Fluctuations Scale - Examiner's initials | INITIALSB5L | text |
| New variable | -- | -- | -- | -- | b6l | B6L Mayo Sleep Questionnaire - Participant - Form date | FRMDATEB6L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b6l | B6L Mayo Sleep Questionnaire - Participant - Examiner's initials | INITIALSB6L | text |
| Change in variable name and response labels | z1x | B6L Mayo Sleep Questionnaire - Participant - Submitted? | B6LSUB | 0, No | 1, Yes | b6l | B6L Mayo Sleep Questionnaire - Participant - Submitted? | MODEB6L | 0, Not completed | 1, In-person |
| Change in variable name | z1x | If B6L not submitted, specify reason | B6LNOT | 95, Physical problem|96, Cognitive/behavioral problem|97, Other|98, Verbal refusal|99, Unknown or inadequate information | b6l | If 'B6L Mayo Sleep Questionnaire - Participant' not submitted, specify reason | B6LNOT | 95, Physical problem|96, Cognitive/behavioral problem|97, Other|98, Verbal refusal |
| New variable | -- | -- | -- | -- | b7l | B7L Mayo Sleep Questionnaire - Co-participant - Form date | FRMDATEB7L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b7l | B7L Mayo Sleep Questionnaire - Co-participant - Examiner's initials | INITIALSB7L | text |
| New variable | -- | -- | -- | -- | b8l | B8L Scopa Sleep - Participant - Form date | FRMDATEB8L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b8l | B8L Scopa Sleep - Participant - Examiner's initials | INITIALSB8L | text |
| New variable | -- | -- | -- | -- | b9l | B9L Scopa Sleep - Co-participant - Form date | FRMDATEB9L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b9l | B9L Scopa Sleep - Co-participant - Examiner's initials | INITIALSB9L | text |
| New variable | -- | -- | -- | -- | c1l | C1L Neuropsychological Battery Summary Scores - Form date | FRMDATEC1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | c1l | C1L Neuropsychological Battery Summary Scores - Examiner's initials | INITIALSC1L | text |
| New variable | -- | -- | -- | -- | e1l | E1L Genetics - Form date | FRMDATEE1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | e1l | E1L Genetics - Examiner's initials | INITIALSE1L | text |
| New variable | -- | -- | -- | -- | e2l | E2L Neuroimaging Available and Findings - Form date | FRMDATEE2L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | e2l | E2L Neuroimaging Available and Findings - Examiner's initials | INITIALSE2L | text |
| New variable | -- | -- | -- | -- | e3l | E3L Other Labs and Findings - Form date | FRMDATEE3L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | e3l | E3L Other Labs and Findings - Examiner's initials | INITIALSE3L | text |
| New variable | -- | -- | -- | -- | d1l | D1L Clinical DLB and PD Features - Form date | FRMDATED1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | d1l | D1L Clinical DLB and PD Features - Examiner's initials | INITIALSD1L | text |