LBD Downloads
General download links
- The LBD REDCap XML
- LBD REDCap Data Dictionary
- LBD 3.0 IVP Data Element Dictionary
- LBD 3.0 FVP Data Element Dictionary
- LBD 3.1 IVP Data Element Dictionary
- LBD 3.1 FVP Data Element Dictionary
Form-level Files
info
Since UDSv4 will no longer include the Z1X form as a data collection instrument, there have been some minor changes the data collected on the Z1X for the FTLD/LBD modules. See the table below for details. The content in the FTLD/LBD modules is not changing otherwise.
Please reference the previous documentation for available resources.
LBD Changes Related to Z1X
The following table lists LBD changes related to Z1X. You can also download this table as an Excel document.
| Change Summary | UDSv3 Form | UDSv3 Question | UDSv3 Variable Name | UDSv3 Response Labels | UDSv4 Form | UDSv4 Question | UDSv4 Var Name | UDSv4 Response Labels |
|---|---|---|---|---|---|---|---|---|
| No change | header | PTID | PTID | Any text | header | PTID | PTID | Any text |
| No change | header | ADRC name | ADCID | List of current ADCIDs | header | ADRC name | ADCID | List of current ADCIDs |
| No change | header | ADRC Visit Number | VISITNUM | Any text | header | ADRC Visit Number | VISITNUM | Any text |
| No change | header | Packet Code | PACKET | IL, FL | header | Packet Code | PACKET | IL, FL |
| No change | header | Form version number | FORMVER | 3, 3.1 | header | Form version number | FORMVER | 3, 3.1 |
| UDSv3 variables consolidated into one date variable | header | Visit Month | VISITMO | 1 - 12 | header | Form Date | VISITDATE | mm/dd/yyyy or yyyy/mm/dd |
| UDSv3 variables consolidated into one date variable | header | Visit Day | VISITDAY | 1 - 31 | -- | |||
| UDSv3 variables consolidated into one date variable | header | Visit Year | VISITYR | 2005 to the present year | -- | |||
| Changed to form-specific in UDSv4 | header | Examiner's initials | INITIALS | Any text | -- | -- | -- | -- |
| No longer in UDSv4 | header | Form ID | FORMID | B1L|B2L|B3L|B4L|B5L|B6L|B7L|B8L|B9L|C1L|D1L|E1L|E2L|E3L | -- | -- | -- | -- |
| New variable | -- | -- | -- | -- | b1l | B1L Clinical Symptoms and Exam - Form date | FRMDATEB1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b1l | B1L Clinical Symptoms and Exam - Examiner's initials | INITIALSB1L | Any text |
| New variable | -- | -- | -- | -- | b2l | B2L UPDRS II| Activities of Daily Living - Form date | FRMDATEB2L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b2l | B2L UPDRS II| Activities of Daily Living - Examiner's initials | INITIALSB2L | text |
| Change in variable name and response labels | z1x | B2L UPDRS II| Activities of Daily Living - Submitted? | B2LSUB | 0, No | 1, Yes | b2l | B2L UPDRS II| Activities of Daily Living - Submitted? | MODEB2L | 0, Not completed | 1, In-person |
| Change in variable name | z1x | If B2L not submitted, specify reason | B2LNOT | 95, Physical problem|96, Cognitive/behavioral problem|97, Other|98, Verbal refusal|99, Unknown or inadequate information | b2l | If 'B2L UPDRS II | Activities of Daily Living' not submitted, specify reason | B2LNOT |
| New variable | -- | -- | -- | -- | b3l | B3L UPDRS III| Motor Examination - Form date | FRMDATEB3L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b3l | B3L UPDRS III| Motor Examination - Examiner's initials | INITIALSB3L | text |
| New variable | -- | -- | -- | -- | b4l | B4L Neuropsychiatric Inventory (NPI) - Form date | FRMDATEB4L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b4l | B4L Neuropsychiatric Inventory (NPI) - Examiner's initials | INITIALSB4L | text |
| New variable | -- | -- | -- | -- | b5l | B5L Mayo Fluctuations Scale - Form date | FRMDATEB5L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b5l | B5L Mayo Fluctuations Scale - Examiner's initials | INITIALSB5L | text |
| New variable | -- | -- | -- | -- | b6l | B6L Mayo Sleep Questionnaire - Participant - Form date | FRMDATEB6L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b6l | B6L Mayo Sleep Questionnaire - Participant - Examiner's initials | INITIALSB6L | text |
| Change in variable name and response labels | z1x | B6L Mayo Sleep Questionnaire - Participant - Submitted? | B6LSUB | 0, No | 1, Yes | b6l | B6L Mayo Sleep Questionnaire - Participant - Submitted? | MODEB6L | 0, Not completed | 1, In-person |
| Change in variable name | z1x | If B6L not submitted, specify reason | B6LNOT | 95, Physical problem|96, Cognitive/behavioral problem|97, Other|98, Verbal refusal|99, Unknown or inadequate information | b6l | If 'B6L Mayo Sleep Questionnaire - Participant' not submitted, specify reason | B6LNOT | 95, Physical problem|96, Cognitive/behavioral problem|97, Other|98, Verbal refusal |
| New variable | -- | -- | -- | -- | b7l | B7L Mayo Sleep Questionnaire - Co-participant - Form date | FRMDATEB7L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b7l | B7L Mayo Sleep Questionnaire - Co-participant - Examiner's initials | INITIALSB7L | text |
| New variable | -- | -- | -- | -- | b8l | B8L Scopa Sleep - Participant - Form date | FRMDATEB8L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b8l | B8L Scopa Sleep - Participant - Examiner's initials | INITIALSB8L | text |
| New variable | -- | -- | -- | -- | b9l | B9L Scopa Sleep - Co-participant - Form date | FRMDATEB9L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | b9l | B9L Scopa Sleep - Co-participant - Examiner's initials | INITIALSB9L | text |
| New variable | -- | -- | -- | -- | c1l | C1L Neuropsychological Battery Summary Scores - Form date | FRMDATEC1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | c1l | C1L Neuropsychological Battery Summary Scores - Examiner's initials | INITIALSC1L | text |
| New variable | -- | -- | -- | -- | e1l | E1L Genetics - Form date | FRMDATEE1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | e1l | E1L Genetics - Examiner's initials | INITIALSE1L | text |
| New variable | -- | -- | -- | -- | e2l | E2L Neuroimaging Available and Findings - Form date | FRMDATEE2L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | e2l | E2L Neuroimaging Available and Findings - Examiner's initials | INITIALSE2L | text |
| New variable | -- | -- | -- | -- | e3l | E3L Other Labs and Findings - Form date | FRMDATEE3L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | e3l | E3L Other Labs and Findings - Examiner's initials | INITIALSE3L | text |
| New variable | -- | -- | -- | -- | d1l | D1L Clinical DLB and PD Features - Form date | FRMDATED1L | mm/dd/yyyy or yyyy/mm/dd |
| New variable | -- | -- | -- | -- | d1l | D1L Clinical DLB and PD Features - Examiner's initials | INITIALSD1L | text |