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Center Freeze Data Download Guide – ADRC Portal

Introduction​

Alzheimer’s Disease Research Centers (ADRCs) can download their center's frozen data via the ADRC Portal. This includes full visit-level datasets for each NACC module, including computed NACC derived variables and missingness recoding, for all participants in the center.

This page describes how to access and download frozen data from the ADRC Portal.

Accessing and Downloading Center Freeze Data​

This section provides a step-by-step guide on how to access your center's frozen data.

Step-by-step guide​

  1. From the ADRC Portal homepage, click View, Audit, and Access Participant Data.

    Alt text: ADRC Portal home page with "View, Audit, and Access Participant Data" tile.

  2. From the View, Audit, and Access Data page, select the tile labeled Center Freeze Data.

    Alt text: Link to "Center Freeze Data" on the View, Audit, and Access Participant Data page.

  3. Alternatively, click Center Freeze Data under the View, Audit, & Access Data section in the sidebar.

    Alt text: Alternative Link to "Center Freeze Data" on the View, Audit, and Access Participant Data page.

  4. This brings you to the Center Freeze Data download page. The latest freeze is always selected by default, but you can use the dropdown to access older freezes.

    Note: Legacy freezes earlier than June 2026 are not available via the ADRC Portal. If you require older freeze data, please reach out to nacchelp@uw.edu.

    Alt text: Center Freeze Data page with the latest freeze automatically selected.

  5. Next, select your desired dataset. The following example shows all currently available modules, but your center may not have all these options if it has no data for a particular module.

    Alt text: Center Freeze Data page showing all possible dataset modules.

  6. Next, select your desired file format. Currently, only CSVs and Parquets are supported.

    Alt text: Center Freeze Data page showing all available file formats.

  7. Finally, click the "Generate Link" button. A download link will be provided for your dataset. Please note that the link is public and expires in 1 hour.

    Alt text: Center Freeze Data page showing a generated download link.

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