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UDSv4 Data Download

Alzheimer’s Disease Research Centers (ADRCs) can download UDSv4 data that has been submitted to NACC via the ADRC Portal.

This includes:

  • Visit-level data for individual participants, and
  • Full UDSv4 datasets for all participants at a center.

This page describes how to access and download UDSv4 data from the ADRC Portal.

Accessing the UDSv4 Data Download Page​

From the top level of the ADRC Portal, click the tile labeled View, Audit, and Access Participant Data.

Alt text: ADRC Portal home page with "View, Audit, and Access Participant Data" tile.

This will open the page where you can:

  • Review and download participant-level data
  • Monitor submission status
  • Download UDS datasets for your center

Downloading Individual Participant Visit Data​

If you need visit-level data for specific participants (for example, to review or troubleshoot a single record), you can download data from the UDS, LBD & FTLD Data page.

Step-by-step guide​

  1. From the View, Audit, and Access Participant Data page, navigate to the View UDS, LBD, & FTLD Data section.

    Alt text: Link to "View UDS, LBD, & FTLD Data" on the View, Audit, and Access Participant Data page.

  2. Use the search interface to locate participants:

    • Search by participant ID if you know the exact ID.
    • Filter using available search fields as needed.

    Alt text: Participant search interface and results list.

  3. Select the participant whose data you would like to download.

    Alt text: Participant selected in results list.

  4. After selecting the participant, a summary page is displayed. Please note that it may take a few minutes for the data to load.

    Alt text: UDS, LBD, and FTLD participant summary page.

  5. From this page, click Download Form CSV to download the UDSv4 data.

    Alt text: "Download Form CSV" button on the participant page.

Monitor submission status​

In the Milestones and Visits section, each visit displays a Submission Date and a Module label. The color-coded module badge provides a quick status indicator:

  • Green (e.g., “UDS ✓”): the submission has passed QC.
  • Red (e.g., “UDS ×”): the submission failed QC and requires attention.

If a submission fails QC, select the item to open the QC details page, where you can see where it failed and resolve the reported errors.

Please note that it may take a few minutes for the visits and their statuses to load, as the system performs database lookups for each visit.

Alt text: Milestones and Visits list with color-coded module QC badges.

This option is intended for targeted retrieval of individual visit records, rather than full center-wide data exports.

Downloading a Full UDSv4 Dataset​

If you need all UDSv4 visit data for your center, use the Audit UDSv4 & Associated Modules interface.

Step-by-step guide​

  1. From the View, Audit, and Access Participant Data page, click Audit UDSv4 & Associated Modules.

    Alt text: Link to "Audit UDSv4 & Associated Modules".

  2. In the UDSv4 & Module Forms interface, select the Download Data link.

    Alt text: "Download Data" link in the UDSv4 & Module Forms interface.

  3. After selecting the Download Data link, a summary page is displayed showing:

    • The total number of visits included
    • The number of participants with UDSv4 data for your center

    Alt text: Summary page showing total visits and participant count.

  4. From this page, click Download UDS Data (.csv) to download the UDSv4 data.

    Alt text: "Download UDS Data (.csv)" button on the UDS download page.

Summary of UDSv4 data download options​

  • Use UDS, LBD and FTLD Data when you need individual participant visit data (for troubleshooting, validation, or review of specific records).
  • Use UDSv4 & Module Forms when you need a complete UDSv4 dataset for your center (for center-wide analyses or data quality checks).

If you have questions, please contact the NACC team.

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